Comments on: Where should data live? (part two) http://www.xmlgrrl.com/blog/2008/12/04/where-should-data-live-part-two/ Tangled musings on identity, privacy, trust, and suchlike Sat, 08 Oct 2011 19:31:02 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Eve M. http://www.xmlgrrl.com/blog/2008/12/04/where-should-data-live-part-two/comment-page-1/#comment-200914 Eve M. Fri, 05 Dec 2008 19:13:30 +0000 http://www.xmlgrrl.com/blog/?p=402#comment-200914 Both the free government service and the private for-pay one seem to lack any details about the privacy protection offered, although you can take a look at what they require for getting access authorization as a medical facility. Having multiple providers is a great way to get them to compete on privacy and availability assurances. (I'm actually a bit discomfited by the privacy policy on the state site; it notes that all information you enter into the site itself is considered "public record"... And in fact, I wouldn't want to rely on government sites alone for this sort of service in any case. YMMV, of course!) Dave, the idea behind DocuBank in particular is to have a high-availability service to get all sorts of documents that give instructions like this. Having just completed a number of estate-planning documents that included checkboxes for what organs are fair game :-), and looking at the wide range of documents this service handles, it would seem to cover lots of gruesome circumstances like this. Both the free government service and the private for-pay one seem to lack any details about the privacy protection offered, although you can take a look at what they require for getting access authorization as a medical facility.

Having multiple providers is a great way to get them to compete on privacy and availability assurances. (I’m actually a bit discomfited by the privacy policy on the state site; it notes that all information you enter into the site itself is considered “public record”… And in fact, I wouldn’t want to rely on government sites alone for this sort of service in any case. YMMV, of course!)

Dave, the idea behind DocuBank in particular is to have a high-availability service to get all sorts of documents that give instructions like this. Having just completed a number of estate-planning documents that included checkboxes for what organs are fair game :-), and looking at the wide range of documents this service handles, it would seem to cover lots of gruesome circumstances like this.

]]> By: Jonathan http://www.xmlgrrl.com/blog/2008/12/04/where-should-data-live-part-two/comment-page-1/#comment-200894 Jonathan Fri, 05 Dec 2008 18:01:36 +0000 http://www.xmlgrrl.com/blog/?p=402#comment-200894 Eve this is neat but there website is seriously lacking any privacy protection or declaration thereof. Exactly how secure is my personal medical info stored with them? Eve
this is neat but there website is seriously lacking any privacy protection or declaration thereof. Exactly how secure is my personal medical info stored with them?

]]> By: Dave Pawson http://www.xmlgrrl.com/blog/2008/12/04/where-should-data-live-part-two/comment-page-1/#comment-200856 Dave Pawson Fri, 05 Dec 2008 12:11:40 +0000 http://www.xmlgrrl.com/blog/?p=402#comment-200856 Great... for those in the US? A 'HIPAA release' sounds quite gruesome! How do I let the guys in the morgue know that I don't want my eyes re-used? Do I have to let them know beforehand to allow access to the data? All accident and emergency units wherever I might visit? Is this a good service for ... X.gov to take up? Regards DaveP Great… for those in the US? A ‘HIPAA release’ sounds quite gruesome!

How do I let the guys in the morgue know that I don’t want my eyes
re-used? Do I have to let them know beforehand to allow access
to the data?

All accident and emergency units wherever I might visit?

Is this a good service for … X.gov to take up?

Regards DaveP

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